The Krasnoyarsk Territory is not the most prosperous region in terms of oncology. The incidence rate is about 400 cases per 100 thousand population, which is higher than the national average. Malignant neoplasms occupy second place in the structure of causes of mortality in the region, second only to diseases of the circulatory system.
AiF-Krasnoyarsk correspondent talked with the chairman executive committee MOU "Movement against cancer" Nikolai Dronov and learned what cancer patients have to face in the struggle for life.
Darling and deadly
Chairman of the executive committee of the International Movement Against Cancer Nikolai Dronov. Photo: AiF
Klim Naimenov "AiF-Krasnoyarsk": Nikolai Petrovich, you probably remember the case of the Krasnoyarsk doctor Alevtina Khorinyak, who was almost imprisoned for what she prescribed seriously ill patient a potent drug. Perhaps she violated the regulations in some way, but she did everything for the benefit of the patient. Why has the law shown such blindness?
Nikolay Dronov: The case became one of the key catalysts in finding a solution to the problem of access to painkillers for needy citizens. This loud story was heard throughout the country. Khori-nyak later took part in the all-Russian forum “For Affordable Quality of Medicine” in September last year and spoke about the situation. The President of Russia was at the forum, so appropriate instructions were given. And things really got off the ground - now it’s not like that anymore. urgent problem, as it was, say, two years ago.
- Not as acute, but still a problem...
Lack of resources is our objective difficulty. Oncology is an expensive branch of medicine, with expensive medicines. There are, of course, more expensive ones, this applies rare diseases. But there is objectively not enough money. Here we need to look for systematic ways to solve the problem. Over the past few years, during monitoring, we have not received any complaints from cancer patients from the Krasnoyarsk Territory. But in the spring of this year, we received a signal that we are still investigating.
The drug supply service of the regional Ministry of Health does not want to comply with the decision of the medical commission and purchase the drug for a specific patient. Young woman, mother of two children, suffering malignant formation. She is shown an expensive, but effective, innovative drug. The head of the department was stubborn: we won’t buy - and that’s it, it’s too expensive. You have a good material and technical base in the region, and one of the best oncology services in the country. But this one special case when the patient cannot be provided the right medicine, - Very alarming symptom. I know that such cases exist for other diseases. It is highly likely that we can assume that, unfortunately, the number of such requests will increase. But people should not make their health and life dependent on the presence or absence of money from the state. Moreover, it also provided guarantees that the person would be treated at the expense of budgets and compulsory health insurance funds.
A cancer patient has no time to wait for budget adjustments. Photo: AiF/ Photo: Ekaterina Saenko
Isn't that what they're saving on?
- If we talk about a systemic solution to the problem, what could it be?
We, as a public organization, for our part, can advise not to give up. You need to know your rights. Cases when the patient is not given the right drug, many in all regions. The reason is the same everywhere - lack of money among the constituent entities of the Russian Federation, which by law are responsible for oncological care. We see two solutions: reducing non-targeted, non-primary expenses and searching for new sources of income.
Faced with misfortune, people are forced to sell their apartments. Photo: AiF/ Photo: Alexander Firsov
- Take another step towards paid medicine?
We are talking about introducing institutions voluntary insurance, risk insurance against critical illnesses. So that citizens, faced with misfortune, are not forced to sell their apartments. But many people have nothing to sell. It's terrible when a person's life depends on money.
How do you monitor the drug situation in the country? How is feedback built with patients?
We have a program to monitor the availability of drugs, this is our public initiative. We are always open to requests and consider each one. A typical situation when we are faced with elementary replies from officials. In this case, we end up in court. But the worst thing is that all this takes time, because there are procedural deadlines for considering the case. But our patients, unfortunately, cannot wait... And everyone has their own truth. The patient’s task is to get well, the doctor’s task is to treat, the official’s task is to save money. Of course, the Ministry of Health’s circle of concerns includes not only cancer patients. And they think about how to cut this money, which is always in short supply, among everyone. But when making such decisions, public health managers must weigh the pros and cons and take into account the balance of interests. Simply put, look not at the cost of the medicine, but at whether it can really help, how effective it is in general. And in the end, is it even possible to compare the price of pills with the value of an active citizen returned to life? The worst thing is to imagine that, say, the head of the pharmaceutical department is sitting and deciding: this one is already old, he will die anyway, this one is completely unknown, but that’s why there was a call from above, he needs to be given.
The right to live
- Is there a certain algorithm of action for a patient who believes that his rights have been violated?
If a person is unable to obtain medicine at a pharmacy, he must ensure that his prescription is put on deferred service. In this case, it must be provided within a maximum of fifteen days. If this does not happen, you must submit applications to the territorial bodies of Roszdravnadzor. It is better to do this in writing and send it by registered mail with acknowledgment so that you have proof of service of the complaint. All government websites have a section “ Feedback", it also makes sense to write there. We must also remember that we are all insured in the compulsory health insurance system as citizens of the Russian Federation. Accordingly, the organization that issued you the policy is also obliged to protect your rights.
By the way, work is currently underway in Russia to introduce the institution of insurance attorneys. And here you can pay a compliment to the Krasnoyarsk Territory. I visited one of the city clinics and was pleased to find a quality control post medical care, where an insurance company representative helps patients resolve various issues. There are public organizations like ours. They are, as a rule, represented in all advisory and consultative bodies under the Ministry of Health. That's why they have their weight. As practice shows, we manage to help the majority of those who contact us. Well, as a final argument, there is the prosecutor’s office and the court.
Nikolai Dronov was born in Moscow in 1973. Graduated from Moscow State Law University named after O. E. Kutafin. Chairman of the executive committee of the IPM "Movement against Cancer", member of the Council of public organizations for the protection of patients' rights under the Ministry of Health of the Russian Federation.In most cases, cancer can be cured, as world practice proves. Russian experience shows something completely different: those who have been diagnosed with a malignant neoplasm have to fight for themselves, defending the state-guaranteed right of every citizen to diagnosis and treatment, including to receive medications, care and care. Nikolai Dronov, chairman of the executive committee of the Movement Against Cancer and member of the board of public organizations for protecting patients' rights under the Ministry of Health of the Russian Federation, spoke in an interview with RIA Novosti correspondent Irina Zubkova about protecting the rights of cancer patients and how to defeat cancer.
— Nikolai Petrovich, what exactly are the rights of cancer patients that need to be protected?
— Most controversial situations arise due to refusal to provide medications or due to untimely provision of medications. People with malignant neoplasms they are provided free of charge. But our state declares a lot of things. We need our citizens to understand: nothing is free, someone pays for everything.
In particular, assistance to cancer patients is financed from the budget of the region in which they live - region, territory or republic. The exception is federal cancer centers, where high-tech care is provided: treatment there is covered from the federal budget.
The biggest problem with our healthcare system is the lack of resources. To cure all patients, much more money is needed than we have now. If the budget has, relatively speaking, one hundred thousand rubles for the treatment of cancer patients, and at current prices it is possible to cure twenty people, but two hundred need to be cured, then what will happen? Twenty patients will be provided with the necessary quality treatment. It’s not hard to guess which people will make up the lucky cohort. The rest will either be treated with cheap drugs and use the simplest, most trivial treatment regimens, or they will be told: “Wait, wait in line, the medicine will come soon...” or “Your stage of the disease is not such a terrible one, you can wait for now...”. Patients listen to this kind of comments from healthcare organizers everywhere, with the exception of some relatively prosperous regions.
- Why are they prosperous?
— Firstly, thanks to proper management. Secondly, due to the volume of resources. For example, in the Moscow region, enough funds are allocated for medicines, but from the point of view of providing patients with antitumor drugs, this is the most problematic region. Nowhere else do we receive as many complaints as from the Moscow region. Apparently, there are difficulties with competent coordination of purchases, logistics, and control over the delivery of drugs to patients.
In Moscow, the Krasnoyarsk Territory, the Samara Region, and the Khanty-Mansi Autonomous Okrug, funds are allocated for drugs, and the situation there is more or less favorable. And in most regions there is simply not enough money, so not everyone is prescribed medications. It is not profitable to treat children and the elderly; they are not sources of generating added value - they are “non-labor resources”. Such is economic cynicism. It turns out that the state itself cannot provide for all those in need to the extent that the state guarantees us.
-What are the other problems?
— A lot of complaints are related to the opacity of the system’s functioning medical and social examination. One person with a certain cancer diagnosis is recognized as disabled, and the second, with exactly the same diagnosis, is refused and cannot clearly explain the reason, although they should do so. He tries to complain, writes to all authorities, asks for motivation. However, the whole problem is that we do not have clear medical expert criteria for recognizing a person as disabled; the activities are conducted in a non-transparent manner and there is no clarity.
In fact, not every cancer patient should be recognized as disabled, unless the disease is last stage. Cancer is no longer a death sentence; in the last 15-20 years it has been successfully treated, most patients then return to normal life, to work. But no one explains this to people. Moreover, the financing system is such that locally it is more profitable to recognize a person as disabled: then money for his treatment can be taken from the federal budget - through Pension Fund. So the more people with disabilities, the easier it is for the regional budget. Therefore, it is more profitable not to treat people properly, but to reduce them to disability.
— Are cancer patients treated in sanatoriums?
— Doctors do not have a consensus on this issue. Cancer patients are not allowed to go to southern resorts, in the sun, but they can go to a pine forest, and there are many procedures indicated for those recovering. In addition, they need not only medical, but also medical social rehabilitation, psychological help, assistance in returning to normal life. The system of care for cancer patients needs medical, clinical psychologists, psychotherapists.
Celebrities who beat cancerFamous Hollywood actress Angelina Jolie underwent a major operation - mastectomy (removal of the breast) to prevent the risk of developing breast cancer.We, as a public organization, advise patients and their relatives, help to cope with difficult psychological situations that arise in connection with the disease, organize various events for the purpose of moral support, talk about what is currently available to citizens, what are the modern achievements of medical science. We have many examples of successful fight against the disease, people share their life stories. But no institution of civil society can replace the institutions of the state. We have different functions.
The same applies to palliative care. The terminally ill also need to be helped: to relieve pain, alleviate suffering, and organize a decent life. This type of medicine began to appear in our legislation relatively recently, and there are still many problems here. In particular, for unknown reasons, hospices were not included in the palliative care system.
— What to do if a diagnosis is made, but treatment cannot be obtained?
— In such a situation, it is necessary, without delay, to go to the head of the medical institution, to the department or ministry of health of the region, to Roszdravnadzor. In particular difficult cases appeals to the prosecutor's office or investigative authorities with a requirement to initiate a criminal case help. Recently, a thirty-year-old girl came to us who was diagnosed with stage three malignant neoplasm of the mammary gland. She asked the gynecologist four times for a referral to an oncologist, but the doctor did not give it. This is not just the height of unprofessionalism, but also an act containing signs of a criminal offense: failure to provide assistance to a patient, inaction.
The main problem is the timing of treatment. Let’s say the diagnosis was made in March, but the regional health budget was approved in September of the previous year, and there is no money allocated for the treatment of a new patient. Why we have such planning is unclear. While the system “sees” the patient, while it includes him in the register, time passes during which he does not receive treatment. All that remains is to write to all authorities and persistently seek hospitalization.
— Can our healthcare help everyone who needs treatment, so that patients do not have to turn to charities?
- Yes. It’s definitely possible to cure children, the state has money for this, and if this does not happen, then it’s still the same problem of ineffective management of funds. I have always been categorically against collecting money to help the sick. State guarantees should be filled with money, and not people should collect funds for their treatment. True, some say: “I don’t want to be treated here, I want it in Germany.” Now, if a patient can be cured in Russia, but he wants to go abroad, that’s a different matter. The therapeutic result does not depend on the smiles of the doctors, or on the presence of a TV and refrigerator in the room. Required medical technology exist here too, but if you want additional services in an Israeli hospital, you have to pay for it. It makes sense to think about voluntary health insurance so that the diagnosis does not take you by surprise and you do not have to sell your last property in order to recover.
Charitable foundations do great, important work, but the state cannot be replaced.
— What government measures will help cope with cancer?
— To make diagnosis earlier, it is necessary to improve the qualifications and educational level of doctors primary care: therapists, doctors general practice, gynecologists, dentists. But the main thing is that citizens need to develop a responsible attitude towards their health. And I think we need financial incentives. A person must pay for Not healthy image life. Our compulsory medical insurance system is not connected in any way with the person; contributions are paid by employers. But if a smoker, a drinker, paid deductions from his salary twice as much as an ordinary person who does not drink or smoke, then he would probably already begin to think about it.
Why don’t our health authorities popularize a healthy lifestyle? Why are sports facilities inaccessible? You can only play sports for money, which not everyone can afford to pay. Why don’t television and other media do anything to create an intolerant attitude towards health risks in society? We have a huge consumption of tobacco in the country and excessive consumption of alcohol. Tobacco smoke- a generally recognized carcinogenic factor. For many years we have been proposing not just to increase excise taxes on tobacco and alcohol, but to use the funds received in a targeted manner to help cancer patients. So far we have not achieved success, but things are moving forward.
We must understand that no one will solve our problems for us. In Tatarstan, the Krasnoyarsk Territory and some other regions, doctors who have identified a malignant neoplasm on early stage, paid incentive bonuses. Very good example, because people in our country don’t care about anything except money. This means that the correct attitude towards health must be formed economically, by developing competent economic incentives for a conscientious attitude towards health, which, in principle, has no price.
Hello. Today we will talk about a disease that has come to almost every entrance and on every street. Today we will talk about cancer. My interlocutor is Nikolai Dronov, chairman of the All-Russian public organization"Movement against cancer", member of the public council under the Ministry of Health of the Russian Federation.
- Nikolai Petrovich, hello.
- Good afternoon.
The first question is: “Movement against cancer” - what kind of movement is this, why do patients need it, when there is such a powerful structure in the country as oncology?
– Thank God, the country has an oncology service system, as you correctly noted. It has at least been preserved, it works and is even developing, which cannot but rejoice. But on the other hand, the “Movement Against Cancer” is intended to unite, first of all, patients and their relatives, sympathetic medical workers, representatives of various sectors of society who see their goal as real help to people faced with a cancer diagnosis. Until relatively recently, this diagnosis sounded like a death sentence. Now we know that there are modern technologies, he is being successfully treated. According to the World Health Organization classification, it is just a chronic disease.
- TV viewers, I think, do not believe us to that extent.
- Why don’t they believe?
- Well, because they look out the window - there is another life there.
– We don’t have enough objective information. Thus, according to the Russian Ministry of Health, over the past year in Russia, 515 thousand 5 people were diagnosed with a malignant neoplasm; a total of about 3 million people with this diagnosis are registered. Unfortunately, mortality in Russia in the first year of life claims almost a third of these people; almost 300 thousand people die.
- What are the figures for oncological pathology in the Amur region, on Far East compared to Russia?
– Indicators, in principle, throughout Russia are quite average. If we talk about how many people got sick in the Amur region, then this is 2,690 people against the background of the region’s population of just over 800 thousand people - this is, in principle, not catastrophic data, but quite alarming.
- What is our mortality rate?
– You know, the one-year mortality rate (that is, mortality) in the first year of life is quite high – 29.3 percent.
- That is, a third dies.
- A third die, yes. A third of those who will be diagnosed this year will not live to see next year, unfortunately.
- Is this more than in Russia?
– These are, in principle, average Russian statistics, but there are regions in the Far Eastern Federal District where the situation looks much better.
- For example?
– For example, Khabarovsk Territory. There, the one-year mortality rate in the first year is slightly more than 20 percent, in Primorye it is 26.2 percent.
- What does this mean that we are ahead of neighboring regions in terms of mortality?
– This suggests that a significant number of patients identified by doctors are patients with stage 3-4, which are quite advanced. This may indicate a number of systemic shortcomings in the organization of early diagnosis of malignant neoplasms, and a lack of cancer vigilance among primary care doctors and doctors of related specialties. Because oncologists do not identify these pathologies, oncologists treat them.
Nikolai Petrovich, between us, our primary regional medicine in the Amur region, in my opinion, is falling apart. Half of the team in the districts are either pensioners or part-time workers, that is, soft-boiled boots. What are we talking about!
– We are talking about the fact that healthcare today is plagued by two problems, if we look at it in an institutional sense: a lack of resources and a shortage of personnel, which entails one after the other. We understand that Government program healthcare development, which was adopted in April, and this document did not find support in the patient community, but was nevertheless adopted. The program reduces government spending on specialized care, which includes oncology, from 161 billion rubles in 2013 to 72 billion.
- Almost more than half.
- More than half. And the federal budget law for the current year and the planning period 2015-2016 reduced federal spending on health care by a total of 34.5 percent - from 515 billion in 2013 to 344.5 by 2016.
Nikolai Petrovich, I’m interested in your opinion as a competent person: why is the state so cynical? Oncology is not dentistry, sorry.
– The state is actually not cynical in this regard.
- Why do they cut the budget in half, it would seem, where it is impossible to cut?
“Unfortunately, we must admit the fact that the health authorities, partly the Federal Ministry of Health, making every possible and impossible effort, lost this round of struggle with the ministries of the economic bloc. And we see the dominance of human calculators in the government.
- Well, isn’t this cynicism?
– Who still view healthcare costs as expenses. They do not view these costs as investments in human capital, the most important thing we have.
By the way, about pain therapy. It seems to me that our doctors are scared to death by the drug control of their relatives - it’s Stalingrad.
– Objectively speaking, the problems associated with difficult-to-access pain therapy and medicinal assistance in this segment, is really connected with such interdepartmental disagreements between federal services on illegal trafficking drugs and the Ministry of Health. Unfortunately, it is not yet possible to find any common ground here. Although this work is underway. There are certain joint conciliation commissions. I really hope that this will give a certain result, because each department has its own truth, but we must still admit that the Ministry of Health is right, because non-medical consumption narcotic drugs There are negligibly few drugs in our country. This is objective reality. Unfortunately, doctors are simply afraid and intimidated by those cases where they are brought to criminal liability.
- Doctors are intimidated, people die in agony.
- People are shooting.
- General. Here's a recent case.
– We just know about those people who are quite authoritative, respected in certain circles and have reached heights, but there are...
- And how many of them from Gogol’s “Overcoat”, these little people are dying.
– Unfortunately, this problem exists, yes. There is a certain fear of doctors here. If we turn to the same order No. 1175 “On the procedure for appointing and issuing medicines“, then the district therapist can do this. But many district therapists refuse: “But let the oncologist give a recommendation.”
- It's clear.
– And so the shifting of responsibility onto each other begins.
Look, Nikolai Petrovich, very important point in this trouble - social and psychological rehabilitation. The oncologist surgeon brilliantly performed the operation and, roughly speaking, removed the woman’s breasts. How can a woman live with this, for example?
– Indeed, if our surgical and radiotherapy treatment is at the level of world standards, and in some ways even exceeds, then the situation with drug provision and rehabilitation remains extremely difficult. Moreover, unfortunately, there is no systematic approach here, because, according to leading experts, of course, rehabilitation should begin from the moment of diagnosis and treatment. Unfortunately, long years the point of view was accepted that rehabilitation in resorts or sanatorium institutions not indicated for patients with malignant neoplasms. But reliable and clinically proven scientific research As of today, I, as a social activist and not a doctor, am not aware of this. Unfortunately, there are two segments of rehabilitation: medical, which people need, and an even more significant segment - social rehabilitation. Allow a person to help and create conditions for him to return to normal life.
- This is really affecting us.
– Unfortunately, in this part this segment is filled by us, public associations. For example, we cooperate very actively with the association of oncological psychologists, we have our own psychologists, namely clinical psychologists who have undergone special training. These are not some former teachers. Of course, these should not be psychiatrists, but these are specially trained people who allow us to correct a person’s emotional background, bring him back to life, teach him to rejoice in some small delights, and find himself.
- Just live.
- Yes, just live. Live calmly and not be afraid of your diagnosis, be able to fight it, help, because the emotional state of the patient is a significant foundation in the fight against the disease.
- Is there something similar in the Amur region? Did your movement somehow come to our region?
– Yes, at the end of last year we had a constituent meeting of the Amur regional branch"Movement against cancer." Our colleagues work here. We will teach patients how to fight the disease with the help of a doctor, lawyer, psychologist.
These were “Simple Questions” for Nikolai Dronov. We talked about life and death, human indifference. All the best and health. Take care of yourself and please live long. Goodbye.
SCHOOL OF PATIENTS Nikolai Petrovich Dronov Chairman of the Executive Committee of the IPM "Movement Against Cancer" Nikolai Petrovich Dronov Chairman of the Executive Committee of the IPM "Movement Against Cancer" Authors: N.P. Dronov, L.S. Moskvina - Executive Secretary of the Branch of the Public Council for the Protection of Patients' Rights at territorial body of Roszdravnadzor for Moscow and Moscow Region
Description of the Patient School A socially useful, socially significant informational and educational project A socially useful, socially significant informational and educational project to inform patients suffering from malignant neoplasms (MNT), and their loved ones, and all interested parties about modern achievements medical science and clinical practice in the field of oncology. A unique system for exchanging reliable information A unique system for exchanging reliable information between patients, medical workers, healthcare organizers, medical organizations, experts and representatives of government bodies at all levels and local government about the most effective and modern methods prevention, diagnosis and treatment of cancer and ways to ensure the availability of these methods in the Russian Federation
Description of the Patient School For cancer patients and their relatives with the participation of leading specialists medical institutions, representatives of health authorities, public organizations, psychologists and lawyers. Practicing doctors inform the participants of the “School” about modern methods of cancer treatment, methods of diagnosing cancer diseases, and the system of rehabilitation measures. Lawyers explain the legal and legal aspects related to obtaining disability, free treatment, interaction with the employer, and social care authorities. An equally important block of the “School” is the participation of a psychologist who tells patients, their relatives and loved ones how not to break down, persevere and fight for best quality life.
Goals and objectives of the School of Patients Formation in patients of a persistent and conscious commitment to scientifically based and clinically proven methods of prevention, diagnosis, and treatment of cancer, as well as rehabilitation, promoting patient compliance with medical prescriptions. Identifying and summarizing the most frequently asked questions medical nature that concerns patients and their relatives, the answers to which will be given by leading medical experts - public opinion leaders, advanced scientists and clinical practices. Professional psychological support for patients with cancer and their loved ones who find themselves in difficult life situation. Identification and practical assistance of professional medical lawyers in resolving legal problems related to receiving free medicines, specialized and primary medical care for cancer patients in the system of state guarantees free receipt citizens of medical care.
Goals and objectives of the School of Patients: modern methods of treating cancer of various nosological forms; methods for diagnosing oncological diseases, carried out both to make a primary diagnosis and in the process of verifying the diagnosis and determining treatment tactics; principles of treatment; procedures for preparing, conducting and subsequent actions during diagnostic and medical procedures; how to behave and what to do if side effects from chemotherapy or other methods of cancer therapy; legally significant aspects related to obtaining disability, free treatment and medications, interaction with the employer, health authorities and social protection of the population, etc.; correct attitude towards non-traditional methods of treatment. Informing patients and their relatives about:
Goals and objectives of the School of Patients Involving potential activists and volunteers to participate in socially useful and socially significant activities of the MOVEMENT, replenishing the ranks of MOVEMENT participants from among patients, their relatives, medical personnel, socially active citizens. Collection and subsequent delivery of collective appeals reflecting the needs of patients with cancer to health care organizers, the leadership of regional and federal authorities responsible for state policy in the field of protecting the health of citizens. Promoting the protection of the rights and legally protected interests of patients with cancer.
Interaction with health authorities The principle of priority of the patient’s interests in the provision of medical care: state authorities of the Russian Federation and constituent entities of the Russian Federation, local government bodies exercising powers in the field of health care, and medical organizations, within the limits of their competence, interact with public associations, other non-profit organizations operating in the field of health protection. (Part 2 of Article 6 of the Federal Law “On the fundamentals of protecting the health of citizens in Russian Federation"from 323-FZ). Constructive interaction with federal and regional health authorities and specialized administrations medical organizations various departmental affiliations and forms of ownership, based on universal human values and the humanitarian nature of mutual contacts
2000 - Listeners took part > 60 125 - Cities of participants - Patients received personal consultations * All data for 2013" title="Results of Patient Schools 162 - In-person and online Patient Schools * > 2000 - Listeners took part > 60 125 - Cities of participants - Patients received personal consultations * All data for 2013" class="link_thumb"> 8 !} Results of Patient Schools In-person and online Patient Schools* > Listeners participated > Cities of participants - Patients received personal consultations * All data for 2013 2000 - Listeners took part > 60 125 - Cities of participants - Patients received personal consultations * All data for 2013"> 2000 - Listeners took part > 60 125 - Cities of participants - Patients received personal consultations * All data for 2013"> 2000 - Listeners took part > 60,125 - Cities of participants - Patients received personal consultations * All data for 2013" title="Results of Patient Schools 162 - In-person and online Schools of patients* > 2000 - Listeners took part > 60,125 - Cities participants - Patients received personal consultations * All data for 2013"> title="Results of Patient Schools 162 - Face-to-face and online Patient Schools* > 2000 - Students attended > 60 125 - Cities of participants - Patients received personal consultations * All data for 2013"> !}
Results of the Patient Schools Increase in the number of patients with reliable information about the prevention, diagnosis and treatment of cancer, as well as about rehabilitation after treatment. Increasing patients' compliance (adherence) to medical prescriptions and awareness of procedures and standards of medical care, as well as modern clinical guidelines Increasing awareness of patients and their loved ones about state guarantees in the field of health care, promoting the protection of the rights of oncological and oncohematological patients to guaranteed and timely access to effective and modern, incl. innovative methods of diagnosis and antitumor therapy, including access to modern anticancer drugs and rehabilitation procedures. Formation of reasoned and substantiated collective proposals for improving the healthcare system of the Russian Federation. Promoting the implementation of the principle of priority of the patient’s interests in the provision of medical care; Promoting the implementation of the principle of accessibility and quality of medical care. Increasing the availability of modern antitumor drugs for oncology and oncohematological patients.
The benefits and significance of Patient Schools In interaction with: NP “Equal Right to Life; Roszdravnadzor and its territorial bodies; Administrations of medical, specialized educational and scientific-medical organizations; Public, human rights and medical non-profit organizations, etc. Formation in patients of a conscious commitment to scientifically based methods of prevention, diagnosis, and treatment of cancer Raising awareness, professional psychological support, legal and social protection patients, provision legal assistance Collection and delivery of collective appeals to healthcare management and government agencies authorities Involving activists and volunteers to participate in socially beneficial and socially significant activities of the MOVEMENT
Proposals Letter from the Ministry of Health of Russia to regional health authorities with a recommendation on the feasibility and usefulness of holding Patient Schools in the regions with the mandatory involvement of professional and patient organizations in their implementation Further improvement legal regulation: Procedures, Standards, MU nomenclature, quality improvement legal technology departmental regulations, unification Grant, information and resource and administrative and organizational support for socially oriented non-profit organizations in organizing and conducting Patient Schools
13.02.2014
Nikolai Petrovich Dronov, Chairman of the Executive Committee of the IPM “Movement Against Cancer”, Member of the Council of Public Organizations for the Protection of Patients’ Rights under the Ministry of Health of the Russian Federation
Information feed:
suicide attempt of Rear Admiral Apanasenko due to lack of painkillers
Expert comment:
The situation with palliative care and pain relief for incurable patients in Russia is very difficult: according to a professor at the National Research Institute of Public Health health RAMS Elena Telnova, the volume of analgesics supplied to pharmacies is only 4% of the need in the country as a whole and 10% in Moscow. The position of the Movement Against Cancer on the issue of accessibility of painkillers completely coincides with the position of the medical community and other patient organizations. It is based on Federal law“On the fundamentals of protecting the health of citizens in the Russian Federation,” which declares the patient’s right “to relief of pain associated with the disease and (or) medical intervention, available methods and medicines" It is enshrined at the legislative level that an incurable patient should not die in agony. But, as Anatoly Makhson, chief oncologist of the Moscow Department of Health, said at the “Movement Against Cancer” Forum, “our medicine has fallen into the sphere of illegal drug trafficking.” And now the entire medical community and patient organizations are drawn into the difficult process of “interacting” with Federal service on drug trafficking, when they have to defend the right of every patient to palliative care and the right of the doctor to provide this assistance. Thus, since the beginning of 2014 alone, the Movement Against Cancer IPM has already received over 20 appeals from citizens whose legal right to pain relief was violated. In our country there are many examples of “excessive” legal regulation (instead of rational), but cases of “excessive” control over drugs that a terminally ill patient receives lead to the fact that a person is put in a hopeless situation, as in the case of Rear Admiral Apanasenko.
